{"id":79086,"date":"2025-02-23T15:44:17","date_gmt":"2025-02-23T14:44:17","guid":{"rendered":"https:\/\/www.myspecialdoctor.it\/%e6%9c%aa%e5%88%86%e7%b1%bb\/%e4%bb%80%e4%b9%88%e6%98%af%e8%a1%a8%e7%9a%ae%e6%9d%be%e8%a7%a3%e7%97%87%ef%bc%8c%e5%ae%83%e6%9c%89%e5%93%aa%e4%ba%9b%e8%a1%a8%e7%8e%b0%ef%bc%9f\/"},"modified":"2025-05-22T17:01:49","modified_gmt":"2025-05-22T15:01:49","slug":"%e4%bb%80%e4%b9%88%e6%98%af%e8%a1%a8%e7%9a%ae%e6%9d%be%e8%a7%a3%e7%97%87%ef%bc%8c%e5%ae%83%e6%9c%89%e5%93%aa%e4%ba%9b%e8%a1%a8%e7%8e%b0%ef%bc%9f","status":"publish","type":"post","link":"https:\/\/www.myspecialdoctor.it\/zh-hans\/%e6%99%ae%e9%80%9a%e5%8c%bb%e5%ad%a6\/%e4%bb%80%e4%b9%88%e6%98%af%e8%a1%a8%e7%9a%ae%e6%9d%be%e8%a7%a3%e7%97%87%ef%bc%8c%e5%ae%83%e6%9c%89%e5%93%aa%e4%ba%9b%e8%a1%a8%e7%8e%b0%ef%bc%9f\/","title":{"rendered":"\u4ec0\u4e48\u662f\u8868\u76ae\u677e\u89e3\u75c7\uff0c\u5b83\u6709\u54ea\u4e9b\u8868\u73b0\uff1f"},"content":{"rendered":"<p style=\"text-align: justify;\">\u5927\u75b1\u6027\u8868\u76ae\u677e\u89e3\u75c7\uff08Epidermolysis bullosa\uff09\u662f\u4e00\u7ec4\u9057\u4f20\u6027\u75be\u75c5\u7684\u7edf\u79f0\uff0c\u5728\u8fd9\u7c7b\u75be\u75c5\u4e2d\uff0c\u76ae\u80a4\u548c\u7c98\u819c\u7684\u5185\u5c42\u7ec4\u7ec7\uff08\u4e0a\u76ae\uff09\u4f1a\u81ea\u53d1\u6216\u56e0\u8f7b\u5fae\u521b\u4f24\u800c\u8131\u843d\u548c\u8d77\u6ce1\u3002\u75c5\u60c5\u4e25\u91cd\u7a0b\u5ea6\u4e0d\u4e00\uff1a\u6709\u7684\u75c5\u60c5\u8f83\u8f7b\uff0c\u51e0\u4e4e\u53ef\u4ee5\u6b63\u5e38\u751f\u6d3b\uff1b\u6709\u7684\u75c5\u60c5\u975e\u5e38\u4e25\u91cd\uff0c\u5728\u65b0\u751f\u513f\u671f\u6216\u51fa\u751f\u524d\u5c31\u53ef\u80fd\u81f4\u547d\u3002\u6700\u521d\u7684\u75c7\u72b6\u901a\u5e38\u51fa\u73b0\u5728\u5a74\u513f\u51fa\u751f\u540e\u7684\u5934\u51e0\u4e2a\u6708\u3002\u6839\u636e\u75c5\u53d8\u7684\u6df1\u5ea6\uff0c\u5927\u75b1\u6027\u8868\u76ae\u677e\u89e3\u75c7\u53ef\u5206\u4e3a\u4e09\u7c7b\uff1a\u5355\u7eaf\u578b\u3001\u4ea4\u754c\u578b\u548c\u840e\u7f29\u578b\u3002\u5728\u5355\u7eaf\u578b\u4e2d\uff0c\u8868\u76ae\uff08\u76ae\u80a4\u6700\u8868\u5c42\uff09\u53d7\u7d2f\uff0c\u7c98\u819c\u5f88\u5c11\u53d7\u7d2f\uff1b\u7596\u6108\u5408\u540e\u4e0d\u7559\u75a4\u75d5\uff0c\u4e3b\u8981\u5e76\u53d1\u75c7\u662f\u76ae\u635f\u611f\u67d3\u3002\u5728\u4ea4\u754c\u578b\u4e2d\uff0c\u75c5\u53d8\u90e8\u4f4d\u8f83\u6df1\uff08\u5728\u8868\u76ae\u548c\u771f\u76ae\u4e4b\u95f4\uff09\uff0c\u7596\u80bf\u8303\u56f4\u5927\uff0c\u5f80\u5f80\u7d2f\u53ca\u7c98\u819c\uff1b\u81f4\u6b7b\u6027\u8868\u76ae\u6eb6\u89e3\u6027\u5927\u75b1\u75c7\uff08\u8d6b\u91cc\u8328\u578b\uff09\u5c31\u5c5e\u4e8e\u8fd9\u4e00\u7c7b\u3002<\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"https:\/\/www.telethon.it\/cosa-facciamo\/ricerca\/malattie-studiate\/epidermolisi-bollosa\">\u66f4\u591a\u4fe1\u606f<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u5927\u75b1\u6027\u8868\u76ae\u677e\u89e3\u75c7\uff08Epidermolys &#8230; 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